Tuesday, September 27, 2011

Lyme Disease Detox

(I'm reposting this from the original site which is located at the end of the article. I thought it had some great info on the importance of detoxing from toxic endotoxins!) -B


Lyme Disease Detox

 Part of the “domino effect” with an infection by a pathogen is that they will tend to make the host’s body environment more and more hospitable for them as part of the infection process and less and less so for the host (you). Therefore, it is found that many pathogenic microorganisms emit toxins (called “exotoxins”) that have a negative and damaging effect on cells, tissues and various systems in the host body and can even induce disease on their own.
Additionally, some of these microorganisms will also release damaging toxins when they are killed (lysed) which are called “endotoxins”. The Lyme endotoxins. It has been found its toxins are particularly neurotoxic (affecting the nervous system) as well as to joints, muscles, organs, etc. Therefore a large measure of the debilitating aspect of those suffering from Lyme infection is the effect of the constant toxic release by the bacteria. It is like having a picc-line with a constant feed of these toxins into the host.
As we will see later in the toxin released by the Bb is very neuro-toxic, it also inhibits the immune and causes inflammation, which is much of the body pains experienced, but also has an enzyme that inhibits the neurotransmitter, acetylcholine, which contributes to the cognitive issues, “brain fog”, etc.
Moreover, much of the degree of discomfort felt during a “Herxheimer reaction”, also called “die-off effect”, is the endotoxins expelled when the bacterium is killed by an effective agent and/or immune cells.
In other words, when an effective protocol is used to begin to kill the offending microbes, part of their survival pattern is to expel more toxins as they die, apparently to try and support those left behind. To the host (you), the toxins can be too much for an insufficient liver and kidneys to handle effectively and the material backs up in the blood and creates the feeling of being ill and uncomfortable.
There is whole myriad of phenomena that can be seen then from nausea, to malaise, to headaches, to diarrhea, to exhaustion, to pronounced body odor, to emotional feelings like panic, anxiety, anger, despair, grief, to flaring of symptoms in general. Another characteristic of the pathogenic toxification is that it also impacts the hosts eliminative channels and functions. It makes sense in terms of an Borrelia b. is particularly known for its release of exo- andCharacteristics of the Lyme Borrellia Bacteria, the insidious survival evolution on the part of the microorganism, for deficient elimination means the host will be further “backed up” or “loaded” with toxic material, which in turn effects the immune efficiency, and ‘round it goes..
Consequently, much of the common problems seen with Lyme-sufferers – affected adrenals, thyroid and other glands, hormonal balance and endocrine system in general, digestive tract, eliminative channels (liver, kidneys, etc.), lymph system, nervous system, cognitive functions, heart and circulatory system (including blood thickened by formation of fibrin), inflammation, etc., etc. –are exacerbated by the toxic material.
In a snowballing effect, with impaired elimination the body “backs up” with the toxic load mounting and creating that much more of a hospitable environment for them. One where there is increasing acidity (lower pH), lowered oxygen, lowered circulation, impaired functions, impaired ability to rest and rejuvenate, impaired immune function and increasingly impaired vitality overall.
While the toxin-releasing characteristic of the bacteria’s survival actions cannot be prevented, knowing the mechanics and characteristic of it allows being able to act to mitigate the effect. It has been seen repeatedly in the extensive field applications of the Protocol that where measures taken to assist the body in detoxifying on an ongoing basis there has been less Herx-related discomfort, greater ease in applying the Protocol in general, boost to the body’s infection-fighting and healing systems and greater gains in a shorter period of time.
What greatly helps with this is to help the body usher toxic material out. Eating well and drinking lots of pure water is a significant ongoing part of this.
 Key aids for this include:   
Barley greens (detoxifies, alkalizes, clears and builds blood, heals the liver, boosts the body and the immune)
Fulvic Acid (changes toxic material and metals to processible forms, boosts the entire body and immune)
Diatomaceous Earth (detoxifies toxins, chemicals, metals, provides minerals and natural silica, kills parasites and cleans intestinal tract)
French Green Clay (detoxifies toxins, chemicals, metals even radiation and provides minerals)
Activated Charcoal (adsorbs many times its weight in toxins, chemicals, metals and poisons)
Miracle II Neutralizer & Soap (detoxifies/neutralizes toxins, chemicals, metals, cleanses the body, improves cellular function, alkalizes, oxygenates and thus provides antimicrobial/antifungal effects.)
Extreme Liver Support (helps the liver and body to detoxify toxins out of the body)
Probiotics/Enzymes (improves digestive tract and liver, breaks down foreign materials and toxins)
Baths/saunas (raising body temperature particularly to perspiring)
Go here to view the article on my website or simply learn more about lyme disease
A lymie getting well:)

MRI Results

Well I FINALLY got the results back from the neurologist office and my MRI results are normal. I guess I should be happy about that - really! But I guess a small part of me was hoping they would FIND something that could be easily FIXED and I could get my life back! Apparently Lyme spirochetes are tricky little buggers and can cause all sorts of neurological problems that never show up on an MRI. The good part is that after 2 months of IV Rocephin antibiotics, my nerve pain has gone down from a TEN to about a 5 (sometimes an 8 intermittently but then it goes away). My leg weakness is SLIGHTLY improved I think - so since I"m showing progress, my Lyme doctor is going to continue my IV abx treatments for one more month.

I'll be honest, I WAS looking forward to a break from having to go the doctor's office 3 days a week and get an IV, but if I'm showing signs of improvement then I want to do all that I can to keep this going. At the time I started my IV treatments - I was THIS close to being in a wheelchair, and although I still have to use my walker (Pink Floyd), I'm using my cane more and more when I can. So although I'm not BETTER, I am improved. So I'll take what I can get! :)

Monday, September 19, 2011

Brain MRI tonight

Well, I just had my first Brain MRI (with dye) - it was 45 minutes of having to stay COMPLETELY STILL otherwise they have to start over and they don't like to do that! They asked ahead of time if I was claustrophobic and I am. So they called in some Ativan to my pharmacy to take an hour before the procedure. Sooooo glad I did, because all afternoon, my anxiety was getting higher and higher and I couldn't eat because I thought I would throw up from my nerves. I think I was worried about the brain dye they have to inject. Thankfully I had a nighttime appt (8 pm at the hospital) so Jenni and Greg took me. It was comforting having them there with me. I'm so glad it's now OVER! Hopefully will get results by end of this week by my neurologist. Crossing fingers!

Friday, September 16, 2011

The Lyme Disease Controversy

THE LYME DISEASE CONTROVERSY

The CDC clinical criteria for Lyme Disease which exist for the purpose of monitoring the rate of Lyme disease nationally are quite narrowly defined in order to ensure a high degree of specificity in the diagnosis. These criteria are mainly useful for the early stages and rheumatological presentations of Lyme Disease, such as when a patient appears with an erythema migrans rash, arthritis, a Bell's palsy, or early central neurologic Lyme disease (meningitis or encephalitis). The CDC criteria are not very helpful for helping the clinician to detect late stage neurologic Lyme Disease. For example, the most common manifestation of late neurologic Lyme Disease is cognitive dysfunction (often referred to as "encephalopathy"). A patient who presents with new onset encephalopathy and a positive blood test for Lyme Disease would not be considered by the CDC to be a case of Lyme disease. Although the CDC recognizes that Lyme encephalopathy exists, encephalopathy is not part of the "surveillance case definition". Hence, physicians who rely on the narrow surveillance case criteria of the CDC for clinical diagnosis will fail to diagnose some patients who in fact do have Lyme disease; in these cases, the patient's treatment will either not occur or be delayed. Such delay in treatment may result in an acute treatable illness becoming a chronic less responsive one.

Other physicians who use a broader more inclusive set of clinical criteria for the diagnosis of Lyme disease will make the diagnosis of Lyme Disease and initiate treatment. The latter group of doctors, by treating some patients for "probable Lyme Disease", will make use of antibiotic responsiveness to confirm their diagnostic impression. These physicians, by erring on the side of not letting a patient with probable Lyme Disease go untreated, will help many patients who otherwise would not get treatment; undoubtedly, however, because of the inclusiveness of their diagnostic approach, these physicians will also treat some patients with antibiotics who do not have Lyme Disease. These physicians would argue that the serious consequences for physical, cognitive, and functional disability associated with chronic Lyme Disease outweigh the risks of antibiotic therapy.

Both sets of doctors are practicing medicine in a reasonable fashion based on the application of certain diagnostic principles, although the therapeutic approaches differ considerably stemming from the narrow vs broad criteria for diagnosis. This is the essence of the medical controversy surrounding chronic Lyme disease. Until medical doctors have a test that definitively identifies the presence or absence of infection (and such a test does not yet exist), the controversy about the diagnosis and treatment of chronic Lyme Disease will continue.

In July 2009, the IDSA held a hearing to review recommendations and critiques of the 2006 Lyme Disease IDSA treatment guidelines by a range of speakers from the United States.  The comments of those speakers can be found at the IDSA website.

Article from The Columbia University Medical Center - Lyme Research Department 

Monday, September 12, 2011

Upcoming LYME WALK 2011 in San Diego! Mark your Calendars!


YOU’RE INVITED!

To Take the Bite Out of LYME!

          PLEASE Support the many Californians stricken with Lyme Disease


5th ANNUAL SAN DIEGO LYME DISEASE AWARENESS WALK

  Live TV coverage        
with Brooke Landau of 
Channel 6

WHEN:  Saturday, October 15, 2011, 8:00-11:00 a.m.

WHERE:  Embarcadero Marina Park North (behind Seaport Village)

·      The walk is an easy two miles along the beautiful San Diego Bay.
·      Registration in not required to attend.
·      FREE Games and Entertainment
·      FREE Lyme disease information brochures, balloons, bottled water   
  • Lyme Disease shirts and wristbands will be for sale
  • Parking available at meters in the park at the end of Kettner Blvd., or Free for 2 hours at Seaport Village with validation
  • Raise money for the California Lyme Disease Association by creating a Lyme Walk team or joining one at http://www.firstgiving.com/CALDAlymewalk/sandiego  or  www.firstgiving.com/caldalymewalk   This is completely optional and not required

Directions

North on I-5 to Downtown
Take I-5 North and exit 6th Avenue. Left on 6th. Turn right on Ash Street. Turn left on Kettner which ends at Seaport Village and turn right to park at meters in the park.
South on I-5 to Downtown
Take I-5 to Front Street exit. Turn right on Ash Street. Turn left on o Kettner Blvd and turn right to park at meters in the park
South on 163 to Downtown
Take 163 South to Ash Street. Turn left on Kettner Blvd and turn right to park at meters in the park

For more Lyme Walk information contact maritza@plant-people.com

For information about Lyme disease visit California Lyme Disease Association at  www.lymedisease.org

Wednesday, September 7, 2011

Avoiding Dairy? Try Coconut Yogurt and Creamers!

Because some of my medications don't react well with dairy products, it was just easier to find alternatives a while back, so I didn't have to "wait a few hours" between taking anything with calcium and my meds. I tried some soy products for a while, but when I discovered Coconut products by So Delicious, I have been using them ever since! They are yummy!
The "So Delicious" brand makes different flavored yogurts, along with Coffee Creamer (which I use daily) and some other products which I have yet to try. I usually buy mine at Henry's (now known as Sprouts) because they aren't yet available at larger stores like Vons.

Another great use for the flavored Coconut yogurts, is that I put them in my magical green smoothies to make them more creamy (if I don't have avocados on hand) The trick with all green smoothies is to provide enough "sweetness" so they taste good and the flavored yogurts do the trick. (I also use iced berry flavored herbal teas to mix in for the liquid part and it adds a GREAT fruit flavor without the sugar if you're like me and trying to keep your fruit to a minimum. :)

Tuesday, September 6, 2011

Mile Marker 16?

Well, I've done about 16 IV antibiotic transfusions now - with about 8 more to go! I'm on the home stretch! I think I WAS starting to feel a bit better, but unfortunately I recently had a bit of a set back due to a death in the family and other major events all happening within a short time. It really is true what they say about stress being such a major hindrance to healing - I felt many of my symptoms returning and flaring up with a vengeance. My blood pressure was sky rocketing (150 over 100) and I wasn't sleeping well at all for about 2 weeks. I wasn't in good shape at all. Now that things are starting to calm down a bit, I'm working very hard at keeping my perspective about things and trying to keep my body from getting that stressed out again. Am back on schedule with my IV treatments so I'm crossing my fingers that I will continue to improve.

Someone recently sent me a link to a woman's story about her own challenges with Lyme Disease called Wild Condor. It's quite an intense story but I was most impressed with her parting remarks which I found to be a wonderful reminder to all of us with chronic illnesses.

She wrote:
"No matter how you feel, go out and live each day as best you can! Exercise is essential to getting better. You have to start slow, and rest in between, but it makes a huge difference in your stamina and immune function. Midway through my illness, I realized that I could be sick at home, or sick out having fun, either way, you have to go on! Going on with your life as planned is important people. Get busy living, or get busy dying! Do not forget, you are still alive, and you still can do it if you try hard enough. Do not give in or give up, it just isn't part of the master plan. Climb the mountains! The beauty of the sunrise on the other side is well worth the journey. Remember, if you have hope, you have everything. Be a warrior!!" - From Wild Condor - http://www.wildcondor.com/lyme
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