Saturday, October 22, 2011

Quick Update

Well, I'm into month THREE of my IV Rocephin antibiotic treatments (3 times a week at the doctors office) and am happy to report that my severe peripheral neuropathy seems to be better. I am no longer at a pain scale of a TEN - more like an intermittent 4 to 7 depending on the day. Trust me, this is a HUGE improvement from where I was. I am no longer shopping for wheelchairs - am still using my walker and cane, but my legs DO feel stronger than they were before I started the IV Rocephin. Unfortunately I still have many of the other symptoms (joint pain, bone pain, extreme light sensitivity, brain fog, etc. etc.) but when you've been so sick and you're ready to call 911 because you're so incredibly sick, that ANY improvement feels like a miracle! :) I know I'm impatient and it's hard because just when I feel like I'm turning a corner, I will "backslide" a bit and have a bad week of symptoms.  Then I start worrying that I will go back to where I was, and I just have to remind myself to be patient and know that I'm doing everything I can to help heal my body. Once again, Lyme has proven to be one of the biggest challenges I've ever faced and I know it's so hard for my non-Lyme friends to understand what it's like. My best friend had Lyme before I got sick and I had absolutely NO idea what she was going thru until it happened to me. Anyway, I'm still plugging along, still trying to stay sane and positive and just hoping, HOPING, that one day this will all be a distant memory. Am so grateful for the support groups I'm a part of and also grateful to those of my non-Lyme friends who have stuck with me through this.