I seem to be sleeping better - instead of either 14 hours a day or some months where I couldn't sleep more than 4 hours a night - it seems more regulated now.
My legs are not as weak as they were, although I still have ups and downs. Some days I can go out with my cane, other days I still have to use Pink Floyd (my pink walker!)
Unfortunately I had a recent herx when I went to double my Tindamax though. Am pulsing Tindamax 2 weeks on, and 2 weeks off. I'd only been taking one a day (500 mg) and my LLMD wanted me to double that. Within a day of taking TWO pills per day, I began to get mind crushing migraines in my skull and I was incapacitated for days. It was awful. I knew it was a Herx when the second night, my fevers returned (100.5) and I just felt so crappy. I stopped taking the Tindamax and the migraines are started to ease up. I'd had a migraine for 5 days at that point. It was so bad, that I couldn't even push my glasses up on my head - within seconds, I would feel pain from the slight pressure of the glasses on my head! So, I'm going to give my body a chance to recover from this and will try again in 2 weeks - this time, will just take a dose and a half to see what happens.
I can't believe I'm coming up on my two year anniversary of Lyme Disease in January. So hard to comprehend that the life I once knew and completely took for granted, is no longer. Yes, I tell myself that I will get my life back, but more and more, I'm starting to realize that it will never be the same. I don't even know if I can get back into the career that I spent years in school for, tons of money in student loans, absolutely loved with a passion. . . it's hard to say if I'll ever be able to do that again.
Looking to my future that is completely unknown and uncertain is a scary thing, but I'm going to remain optimistic and just be open to what life has in store for me. As I recently posted, I'm seeing the light at the end of the tunnel, and for once, it's not a train! :)
XXOO
