Sunday, November 20, 2011

Month Four of IV Rocephin

I'm into Month Four of my IV Rocephin antibiotics. The good news is that I've noticed some  symptoms have really improved from four months ago - mostly with the severity of my nerve pain. I'm also noticing that my word recall is getting better, though I still suffer from "Brain Fog", it's just not AS bad as it was a year ago! I can fill out forms on my own more and more without having my daughter come over to help me.

I seem to be sleeping better - instead of either 14 hours a day or some months where I couldn't sleep more than 4 hours a night - it seems more regulated now.

My legs are not as weak as they were, although I still have ups and downs. Some days I can go out with my cane, other days I still have to use Pink Floyd (my pink walker!)

Unfortunately I had a recent herx when I went to double my Tindamax though. Am pulsing Tindamax 2 weeks on, and 2 weeks off. I'd only been taking one a day (500 mg) and my LLMD wanted me to double that. Within a day of taking TWO pills per day, I began to get mind crushing migraines in my skull and I was incapacitated for days. It was awful. I knew it was a Herx when the second night, my fevers returned (100.5) and I just felt so crappy. I stopped taking the Tindamax and the migraines are started to ease up. I'd had a migraine for 5 days at that point. It was so bad, that I couldn't even push my glasses up on my head - within seconds, I would feel pain from the slight pressure of the glasses on my head! So, I'm going to give my body a chance to recover from this and will try again in 2 weeks - this time, will just take a dose and a half to see what happens.

I can't believe I'm coming up on my two year anniversary of Lyme Disease in January. So hard to comprehend that the life I once knew and completely took for granted, is no longer. Yes, I tell myself that I will get my life back, but more and more, I'm starting to realize that it will never be the same. I don't even know if I can get back into the career that I spent years in school for, tons of money in student loans, absolutely loved with a passion. . . it's hard to say if I'll ever be able to do that again.

Looking to my future that is completely unknown and uncertain is a scary thing, but I'm going to remain optimistic and just be open to what life has in store for me. As I recently posted, I'm seeing the light at the end of the tunnel, and for once, it's not a train! :)
XXOO

3 comments:

  1. Sandie,
    can you please give me the name of your doctor? My name is rebeca.. I think we talked once on MD Junction. I never followed up on finding an LLMD, and now because of my symptoms I feel as though it is necessary.
    My email is rmcabrerasd@yahoo.com
    Thank you for your help and stay strong!!!!
    Rebeca in SD =)

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  2. Rebeca - I am SO SO sorry that I just got your post! As I said, I was having some weird issues with my blog that I JUST got resolved and luckily I saw your message here! I'm going to email you directly so we can talk further - I'm more than happy to help you. I vaguely do remember talking with you on MD Junction so if you need an LLMD I can certainly help!
    Thank you again for writing! :)
    -Sandie

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